Tag Archives: Caring

Sunday Musings On Monday

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My mind is wandering today. It is pieced. I’ve been working on the cover of my new book coming out soon. Visit my website JulieSeedorf.com if you want to know more. While I write, occasionally I think of other things, and thoughts of my week interrupted the creativity. The week was a mixture of happiness and sadness. Isn’t that what our life is about most of the time, only we don’t take the time to be thankful for the mixture. We want our life to be smooth sailing. No ripples to mix it up. That never happens. Why do we expect it?

I went to a funeral of a friend this week. I’ve known her for two years. She was sixty-years old, smart, funny, kind, loving and brave. She’s had cancer for as long as I’ve known her. I saw her at her lowest low, and her highest high when she experienced remission for a short time. Through it all she never complained, always lifting others up, and was a devoted mom and friend. If you met her you might have thought she had an easy life. I knew better as she shared life’s experiences with me, but at her funeral, listening to her daughter speak, I was surprised at the early hardships she didn’t share.

My friend, was a migrant, coming to this country when she was a child. She worked in the fields in Texas and California, starting when she was nine years old. They were twelve hours days, seven days a week. Her husband died in an accident when her children were small. There was no money and no life insurance, or help back then from Social Security, and she wouldn’t have qualified if there was until she became a citizen, which eventually she did. I suspect it wasn’t as hard to become a citizen back then as it is now. Life threw her and her children many hard knocks, yet she wasn’t bitter.

As I listened to her daughter speak, I thought back to the age I would have been when my friend was nine. I was twelve-years-old and hanging with my friends, going to concerts and leading a care-free life. At nine, her age, I was playing with Barbie dolls and very innocent about the world. I thought about my kids and what they were doing at that age and I counted my blessings, but yet I was appalled that we in the United States, back then, let child labor happen. Not only did I grieve my friend, but I grieved the way she had to navigate her childhood. I have been insulated in my life from what those of other cultures go through in my country, and in their home country. My friend’s family came here to give them a better life from violence and poverty. Would I have done the same with my children? I would like to say I would, but I don’t think I had the courage that my friend and her parents had to break through the barriers.

I never gave a thought to the people that drove up to Minnesota from Mexico and down south, that worked in our fields and in our canning factories. We needed them because there were not enough workers to fill the shifts. They became a part of our community for a few months, yet, they were not part of our community because they kept themselves separate from us. Probably because they would not be accepted, possibly out of fear of the unknown of another culture invading our space that we weren’t familiar with.

This is not a political post. It’s a post about that which we fear, the unknown of those that are different because we may not know someone of a different culture or…we may not know their history. We don’t take the time to listen and hear their past, and what is driving them to their future. I have been thrust out of my small town roots into a mix of different experiences and different cultures since I moved, and am learning more everyday about others and myself and the misconceptions I’ve had. Because I either didn’t know better, or didn’t take the time to go beyond my tiny little world except to judge that which I had no experience in. There is an enormous amount for me to still learn about the diversity of the world today.

I feel blessed to have known this woman and learn about her Mexican heritage. She was proud of her roots and made sure her children are too. We as her friends were given a small understanding of her rich culture, as she shared it with us with pride. Though she hadn’t much money, I would call her rich, and she felt that way because of where she came from. To her wealth was family, friends and faith. . A faith that never waivered during her journey. All of us are richer too because we knew her. Rest in peace. We will never forget your quiet lessons.

Ending The Old—Beginning the New

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It’s been a rough and tough year in my life. 2023 will go down in my mind as the most difficult year I have experienced. It’s been a year full of blessings, stuffed with caring and joy.

You might think those two statements can’t possibly both stand side by side and be true.

2023 will be marked as the year I became a widow. After years of confusion and pain and memory loss for my husband, God chose to take him home and give him peace from the PTSD he lived with because of the Vietnam War, from the pain he suffered from his back and stomach, and from the anguish he felt when he realized his mind was playing tricks on him, giving him hallucinations and fear at what was happening with his memory.

Watching someone you love suffer, blaming yourself for not doing enough, or not knowing what to do as a spouse and caregiver, destroys any semblance of sanity. The family, children, no matter their age, suffer too, and their feelings get overlooked, especially by the caregiver because the caregivers can’t get outside of their grief to help kids sort through what’s happening to their dad or mother.

And then… deep breath… there are the friends and other family members who God also chose to bring home to him, leaving us devastated at the emptiness of those people being gone.

Worst year of our lives.

The blessings. When you are reeling from the pain, the most surprising events happen. New friends pop up to lift you up, carry you and lead you through the darkness. Old friends never let you go and surround you with prayers, and knowing you so well, they sense what you need when you didn’t know you needed it.

Extended family, though separated by miles or community, come together, sharing your pain but offering memories and hope for the future by letting you know that family is forever.

The dark road you are on is lit by the kindness of others.

My road has included stops I never wanted to make, but looking back I am thankful the roadblocks included these stops. I didn’t want to sell my home and leave my community of 62 years. I didn’t want to move my husband to memory care, and I didn’t want to move again this past year to a new place and another community. However, I did. I learned lessons I never would have learned had I stayed stuck in my old life.

I met people that expanded my world. I learned a handicap and age does not have to define your life. Courageous, beautiful souls live in bodies twisted from life. They let their spirit define them.

I learned to look into people’s eyes and souls and not judge them by race or gender or age. Their hearts beat the same as mine.

I learned to look beneath the glitz of our materialistic world and see those that are missed and forgotten. Our neighbors may be one paycheck or social security check away from homelessness or food insecurity. It’s easy to judge when you haven’t experienced it.

I learned our health care system and assisted living and memory care need change so nurses and aides aren’t set up to fail by lack of training, horrible workloads and hours, because these facilities only have to staff the bare minimum. Regulations mandating enough staff are sadly lacking. Facilities shortchange staff on wages so it’s hard to be competitive with other careers. Management always seem to be compensated. Elder abuse is alive and well propagated by money and greed.

I learned even though you pay over $4000 for a room in memory care, you have to provide your own toilet paper. That may seem like a small thing but those small things add up. Not only do you pay the price for the empty room, you must provide furniture, essentials plus every little thing staff does for you, including picking you up off the floor has a charge. I learned that in assisted living, if you fall no one can help you up or give you CPR, that includes staff. You have to call 911. I learned to ask about details such as this when moving in. Not all facilities do this but many for profit establishments do.

I may not have wanted to educate myself on any of these things, however, I would have missed meeting the people that changed my life for the better, teaching me that you can smile and play during the pain of whatever situation you are in. Their quiet courage and faith moved me beyond words

I love where I now live, city and building. My building mates enrich my life. I see my family often. And it’s a new year full of possibilities. I have a new slogan, “Be careful what you don’t wish for.”

I did make a few resolutions I know I can keep. I am going to hang my toilet paper any way I choose. I don’t have to make my bed, because then I don’t mess it up at nap time. I can eat crackers in bed. I’m the only one that sleeps there and the crumbs will be gone when I wash my sheets. My clothes will be clean, but I see no need to fold my underwear, you can’t see those wrinkles. And if I choose to throw my jeans in the drawer unfolded after washing them, when I wear them, I will be coordinated, wrinkle coordinated. My wrinkled jeans will match my face.

It’s a new year. I’m going to try and learn from the old, keep the lessons I experienced close and hope I am up to the task of what I encounter in 2024.

Life is not a fairytale. It is mixed with dreams, sorrows, love, defeat, peace and pain. We can get through it if we rely on each other and lift someone up when they can’t go on, and let someone lift us up when we are buried by the facts of life. And if we are lucky, somewhere in that mix we can hold on to a tiny piece of a fairytale, allowing us to keep on dreaming and growing by our experiences

Happy New Year!

A little postscript: I was informed one of those courageous people I mentioned died. I knew her as Dee Dee. My heart is sad but I will go on always remembering her kindness that she showed my husaband and I. No matter his problems, she always made him feel valued and cared about. The sense of humor they shared together made his last months memorable. The quiet faith she and her husband shared with us at every nightly meal will stay in my heart forever. Look beyond the disability and find the heart. Dee Dee showed us hers. Rest in Peace Dee.

In the Waiting Room

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I have always been a writer. The hobby started as a child and was something my mom encouraged. She was big on documentation. I certainly believed that after she died, and I inherited all the paperwork detailing things in her long life. The paper paraphernalia weren’t always appreciated, but after she left us, those writings became more precious.

My documentation started as a diary in my early youth, in my middle years journaling, and finally as an older adult, a column called Something About Nothing in the Albert Lea Tribune. That was I think, a twelve year gig. Technology changed from writing a column to this blog.

Recently I began looking back through my journals and they were helpful in reviewing my life, bringing back memories and seeing where I have grown, and where I have been stuck. Writing and journaling has always been a way to get my feelings out and to process them, many times letting of what I was upset about because I released it in word on paper without exploding at anyone. The times I didn’t journal are the moments I wrongly exploded at people including my husband and children.

Since our life with Alzheimer’s has begun I have shared with you the ups and downs. I’ve laid bare my feelings and emotions risking the backlash and disapproval of some. It was my way of coping and as I have received wisdom from others writings I wanted to share my experiences to let readers know they are not alone. I have heard from so many of you the life path we share. We have a choice to stay private or to put our hearts out there for all to see.

Thinking back to the times I’ve sat by bedsides of my family, and those acquaintances in the nursing home where it was at one time my job to comfort people in their last hours, I believe it never gets easier no matter how frequent you’ve been in that last waiting room with someone.

Each person’s last journey is different, which makes your own experience unique. It impacts wives, children and friends in separate ways, though they are with the same person. If each person at a bedside sat down and wrote their feelings each perspective would not be the same.

The waiting room. Minutes and seconds tick off on the clock. The first person whose death I witnessed was my cousin Ervin. He was in the hospital and we came to visit. My aunt, his mother, and also his wife were there. He took a quick turn for the worse and we knew he would go to a better place soon. My aunt asked if my husband and I would stay with them. I wanted to run out of the room and go home but felt we had to stay. I had never seen anyone die before and I was scared of my reaction, and instead of being a comfort, I would be a problem. I need not have worried. I held it together and kept my aunt close and my cousins death was peaceful.

A few years later my mom called me to be with my uncle, my dad’s brother. My mom left and he got worse. I was left with the choice of life support. I knew he didn’t want that and he had lived his life. I was there when he too left this earth.

There have been other occasions to sit with my loved ones on a final journey. It is never easy. It is never the same. It is never where I want to be. Yet, I have felt the presence of God. I have felt the presence of angels or messengers or whatever you want to call them and have seen the faces of my loved ones smile in welcome. Sometimes the waiting room lasts for weeks, or it might be hours or days. It is never easy but it is what you do for someone you love

That isn’t always the experience of everyone but that has been mine. My mother had a glowing smile on her face while she was in the waiting room. I asked her what she was smiling about and she answered, “Because I’m going to see your dad, my mom and dad and my brothers soon.”

Those words gave me peace. I don’t pretend to understand what happens while our loved ones are in the waiting room. And I have no explanation why some leave this earth easy and why some have to struggle so much.

Life is full of puzzles. When serious things are happening our emotions can get jumbled. We don’t see things clearly. All we can do is wait for the outcome no matter the situation. We can’t see the forest for the trees. We begin our life in the waiting room waiting to be born. And we occasionally end our life in the waiting room too.

For me sharing the journey through journaling and writing helps me sort out all those confusing moments preparing us for the next journey, or the waiting room where we can be silent and find our next path.