Ending The Old—Beginning the New

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It’s been a rough and tough year in my life. 2023 will go down in my mind as the most difficult year I have experienced. It’s been a year full of blessings, stuffed with caring and joy.

You might think those two statements can’t possibly both stand side by side and be true.

2023 will be marked as the year I became a widow. After years of confusion and pain and memory loss for my husband, God chose to take him home and give him peace from the PTSD he lived with because of the Vietnam War, from the pain he suffered from his back and stomach, and from the anguish he felt when he realized his mind was playing tricks on him, giving him hallucinations and fear at what was happening with his memory.

Watching someone you love suffer, blaming yourself for not doing enough, or not knowing what to do as a spouse and caregiver, destroys any semblance of sanity. The family, children, no matter their age, suffer too, and their feelings get overlooked, especially by the caregiver because the caregivers can’t get outside of their grief to help kids sort through what’s happening to their dad or mother.

And then… deep breath… there are the friends and other family members who God also chose to bring home to him, leaving us devastated at the emptiness of those people being gone.

Worst year of our lives.

The blessings. When you are reeling from the pain, the most surprising events happen. New friends pop up to lift you up, carry you and lead you through the darkness. Old friends never let you go and surround you with prayers, and knowing you so well, they sense what you need when you didn’t know you needed it.

Extended family, though separated by miles or community, come together, sharing your pain but offering memories and hope for the future by letting you know that family is forever.

The dark road you are on is lit by the kindness of others.

My road has included stops I never wanted to make, but looking back I am thankful the roadblocks included these stops. I didn’t want to sell my home and leave my community of 62 years. I didn’t want to move my husband to memory care, and I didn’t want to move again this past year to a new place and another community. However, I did. I learned lessons I never would have learned had I stayed stuck in my old life.

I met people that expanded my world. I learned a handicap and age does not have to define your life. Courageous, beautiful souls live in bodies twisted from life. They let their spirit define them.

I learned to look into people’s eyes and souls and not judge them by race or gender or age. Their hearts beat the same as mine.

I learned to look beneath the glitz of our materialistic world and see those that are missed and forgotten. Our neighbors may be one paycheck or social security check away from homelessness or food insecurity. It’s easy to judge when you haven’t experienced it.

I learned our health care system and assisted living and memory care need change so nurses and aides aren’t set up to fail by lack of training, horrible workloads and hours, because these facilities only have to staff the bare minimum. Regulations mandating enough staff are sadly lacking. Facilities shortchange staff on wages so it’s hard to be competitive with other careers. Management always seem to be compensated. Elder abuse is alive and well propagated by money and greed.

I learned even though you pay over $4000 for a room in memory care, you have to provide your own toilet paper. That may seem like a small thing but those small things add up. Not only do you pay the price for the empty room, you must provide furniture, essentials plus every little thing staff does for you, including picking you up off the floor has a charge. I learned that in assisted living, if you fall no one can help you up or give you CPR, that includes staff. You have to call 911. I learned to ask about details such as this when moving in. Not all facilities do this but many for profit establishments do.

I may not have wanted to educate myself on any of these things, however, I would have missed meeting the people that changed my life for the better, teaching me that you can smile and play during the pain of whatever situation you are in. Their quiet courage and faith moved me beyond words

I love where I now live, city and building. My building mates enrich my life. I see my family often. And it’s a new year full of possibilities. I have a new slogan, “Be careful what you don’t wish for.”

I did make a few resolutions I know I can keep. I am going to hang my toilet paper any way I choose. I don’t have to make my bed, because then I don’t mess it up at nap time. I can eat crackers in bed. I’m the only one that sleeps there and the crumbs will be gone when I wash my sheets. My clothes will be clean, but I see no need to fold my underwear, you can’t see those wrinkles. And if I choose to throw my jeans in the drawer unfolded after washing them, when I wear them, I will be coordinated, wrinkle coordinated. My wrinkled jeans will match my face.

It’s a new year. I’m going to try and learn from the old, keep the lessons I experienced close and hope I am up to the task of what I encounter in 2024.

Life is not a fairytale. It is mixed with dreams, sorrows, love, defeat, peace and pain. We can get through it if we rely on each other and lift someone up when they can’t go on, and let someone lift us up when we are buried by the facts of life. And if we are lucky, somewhere in that mix we can hold on to a tiny piece of a fairytale, allowing us to keep on dreaming and growing by our experiences

Happy New Year!

A little postscript: I was informed one of those courageous people I mentioned died. I knew her as Dee Dee. My heart is sad but I will go on always remembering her kindness that she showed my husaband and I. No matter his problems, she always made him feel valued and cared about. The sense of humor they shared together made his last months memorable. The quiet faith she and her husband shared with us at every nightly meal will stay in my heart forever. Look beyond the disability and find the heart. Dee Dee showed us hers. Rest in Peace Dee.

Bouncing Back

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Writing has always come easy to me. It’s been a way to get my feelings out
and move on. Lately I have been frozen, not able to articulate much of
anything.

If you’ve followed my journey and the trials of living with someone with
memory loss, then you’ve known the struggles. It was probably obvious to
everyone but me I wasn’t handling it well. I was plowing through. Reacting,
reacting, reacting.

After my husband went into memory care in late November, it was followed by
both of us getting Covid, and for ten days we were both sequestered in our
separate apartments. It gave me some respite, but it wasn’t enough. I thought I
was fine, but I was pretending.

In the middle of January, I had to move out of the senior living community
where my husband was in the memory care section. It meant more packing. It felt
like all I had done during the past eight months was pack. The move went smoothly,
and I now live in a small, peaceful, cute apartment with others my age. My body
did not react well to the peace or the change. As long as things were chaotic,
I could seem to hold it together, but my mind didn’t know what to do with the
peace.

I hadn’t been eating well in a long time. I wasn’t hungry and my throat,
chest and stomach tightened when I thought of eating. The one thing I had going
for me was that I slept soundly at night until about a week after I moved.

I woke up in the middle of the night with a tight chest, feeling like I
needed to burp but couldn’t, and experiencing wanting to jump out of my skin.
Crying all the time was easy. I finally realized I needed help. I couldn’t go
on pretending I was alright, though I was probably the only one that thought
that. My daughter took me to the ER. No, I wasn’t having a heart attack; I was
having a panic attack and severe acid reflux. Basically, I was having a
meltdown.

For the past twenty years, I had been on anxiety medication and medication
for my stomach, but those medications were stopped in October. I foolishly
thought I could do without it during the most stressful period of my life.

Because of my up and down anxiety about our situation, I alienated some of
my family. They couldn’t deal with our drama and if you know me, in good times
I am a dramatic person, so multiply that when I am depressed and anxious.
Knowing this only added to my anxiety and depression. And yet, though I knew
those facts, I didn’t seek help. There was no time in the drama of my life to
do that for me.

The silence of being in a new place after my diagnosis in the ER was a
blessing. My doctor said I was exhausted. I needed rest. Some days I would just
sit on my bed, close my eyes, listen to the silence and breathe. It was all I
could do. The thought of making myself food or paying a bill, doing any cleaning,
and even going downstairs to get the mail was too much. I felt frozen.

After the first week on medication, I was slightly better, although the meds
were messing with my stomach, so I decided I needed to try to do something. My
anxiety and stomach were still yelling at me. I would tell myself: “At 1:00 I’m
going to clean the bathroom.” I’d clean the bathroom and go right back to my
bed to breathe. At 2:00 I’d complete another small task. Surprisingly, I got
quite a bit done this way. Eventually I would have shorter intervals.

Little by little and another change of medication so my stomach wasn’t so
wonky, I am improving. I can go down to coffee, visit my husband and even make
it to Menards with a friend to find curtains for my window without shaking or
feeling I want to run and hide. I’m taking it slow.

For some reason we think we can do it all. Maybe it’s the media telling us
we can do it all. Maybe it’s our stubbornness that we don’t admit we need help
to navigate the hard times in life. It could be we listen to the voices that
have never walked in our shoes and don’t understand, making that known with
their words, and we hear those voices the loudest. It could also be we were
taught to show any weakness is shameful. Growing up in the 50s many times
parents would warn us when we were crying: “You want something to cry about?
I’ll give you something to cry about.” Tears were not accepted, especially for
men.

As a result, many of us oldsters hide what is happening. Wisdom comes with
age and experiences. I absolutely was not the most understanding daughter with
my mom when my dad died. I was 20, newly married with a baby on the way and so
I didn’t understand what a loss it was to her. I was too mired in me. When she
got dementia, at first, I ignored it. I didn’t know how to deal with it.
Because of this I understand the younger generation not understanding our aging
process.

Healing from mental health and physical problems is a journey. Each person’s
timeline is different and whatever they are feeling is real to them and
shouldn’t be compared to our own journey. We need to not judge mental health
issues and embrace supporting those we know whether we understand or not. When
you are in the midst of angst it’s hard to find your way to the resources
available and then navigate the muddy road of the process of organizations.
That’s where the support of friends and family comes in, finding the resources
and gently pointing us to better health while listening and being patient.

I again can laugh and see light in the future. Prayer and family and
friends, along with the medical community, are walking the steps with me. They
are proof angels still exist. I am sharing so those who feel hopeless know life
can be good again. I’m getting there. Find your angels. They are there if you
share your struggle. And you might find them where you least expect it. I did.

Can’t We Have More Than One Church Family?

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If you have read my previous blogs you know my family is a mixture of religions. I have been a Catholic and turned Lutheran when I had my family. As I get older and ponder my religious upbringing the more I seem to question, not whether I believe in God, but why I need to attend one sole church.

The thought crossed my mind as I attended my Granddaughter’s confirmation. I knew why we had to belong to one church as my children grew up, so they could attend Sunday School, Bible School and learn more about God. That’s the way it is done. As I get older and have no children to raise I ponder why I can’t have many church families.

I loved the church service at the confirmation ceremony and the way my Granddaughter’s church, Cross of Peace Lutheran Church in Shakopee, MN, prepared their children for confirmation and made their day special. It made my day special too with the upbeat and contemporary service. You could feel the joy. I enjoyed the experience of worshipping in a congregation that was not my home church.

This week I decided to test my theory in my own home town. I decided to drop in and visit Open Doors United Methodist Church. It was my dad’s home church. I felt welcome the minute I walked in the door. The chatter and feeling of warmth immediately drew me in. As I experienced the services, different from my home congregation, I was moved. Looking at the bulletin I was drawn into wanting to attend some of their activities. It was Mother’s Day so the kids handed out homemade bookmarks to mothers. A woman I met briefly a few weeks earlier, invited me to dinner with her family. I already had plans but I appreciated the invitation. Another person invited me to a Bible Study.

After leaving I pondered visiting two different churches so close together, both different, but both feeding my heart and teaching me about the Lord and the gospel and church family. Each church, my own included, has an energy all their own.

I love the people in the church where I belong. My point is not unhappiness with my own home congregation, Good Shepherd Lutheran, it is something inside of me that wonders why we can’t have more than one church family in 2019. I know the doctrine of each church differs, but I also know very few people who 100 % follow the doctrine of their church. I am a mixed breed of religions and perhaps that is what is fueling my questions.

In my cozy mystery series books, the Fuchsia, MN Series, I think I addressed what I was feeling without knowing it. In Fuchsia, we have the We Save You Christian Church. Everyone in Fuchsia goes to the church. The denominations are not the same. The building is shared by all religions with the Priests and Ministers presiding over each denominations services but sharing the building. Residents can attend the service of their choice but many times they attend a service of another denomination because they want to change it up. Because they are all under the umbrella of one building, they are all one church family holding some events together. Maybe I pulled that out of some deep down feelings I have been hiding.

What would happen if we attended different churches on Sunday, expanding the church families that we have?  What if we weren’t so territorial about our people, but encouraged them to not only worship and take part in our church activities but of other churches too, and we welcomed others to join our activities without expectations. What if we welcomed and encouraged expanding church families and encouraged them to give their money wherever they worshipped for the Sunday? It would come back to us when others worshipped at our church.

I found events enticing me to attend in both churches where I worshipped in the last two weeks. At Cross of Peace Lutheran, I would love to participate in their Women, Wine and Woods event. At Open Doors I would love to participate in their Bible Study. There are things in my church too to attend. And there are events I wouldn’t mind helping with at each church such as a library and children’s book Sunday.

Am I advocating a pick and choose religion? Not really. I am advocating expanding and becoming part of a larger nurturing family of believers, rather than limiting ourselves to one inclusive congregation where attending another church or religion in your community might be viewed as a betrayal. I view it as enriching our lives with a bigger family brought together to learn about God.

I find I expand my world by seeing things through others eyes and the same can be said by learning about how others worship and what they do to feed their flock.

We have a fear in our congregations, I think it is underlying and not said, but in smaller communities perhaps, fostered silently, and that is that we are in competition with others churches and religions, and we need to keep people within our walls.

I love Billy Graham’s quote: Christianity means a lot more than church membership. And we’ve all heard the quote by Billy Sunday: Going to church doesn’t make you a Christian any more than going to a garage makes you an automobile. I agree with both. But having a church family that has your back can change your life.

Spending time with others with like interests in various activities feeds us to come together in prayer and outreach, bringing with it laughter, and comfort and a deeper understanding of the word.

These thoughts are just those of a rebel old person. Whose hallowed halls will I still be welcome in?