In the Waiting Room

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I have always been a writer. The hobby started as a child and was something my mom encouraged. She was big on documentation. I certainly believed that after she died, and I inherited all the paperwork detailing things in her long life. The paper paraphernalia weren’t always appreciated, but after she left us, those writings became more precious.

My documentation started as a diary in my early youth, in my middle years journaling, and finally as an older adult, a column called Something About Nothing in the Albert Lea Tribune. That was I think, a twelve year gig. Technology changed from writing a column to this blog.

Recently I began looking back through my journals and they were helpful in reviewing my life, bringing back memories and seeing where I have grown, and where I have been stuck. Writing and journaling has always been a way to get my feelings out and to process them, many times letting of what I was upset about because I released it in word on paper without exploding at anyone. The times I didn’t journal are the moments I wrongly exploded at people including my husband and children.

Since our life with Alzheimer’s has begun I have shared with you the ups and downs. I’ve laid bare my feelings and emotions risking the backlash and disapproval of some. It was my way of coping and as I have received wisdom from others writings I wanted to share my experiences to let readers know they are not alone. I have heard from so many of you the life path we share. We have a choice to stay private or to put our hearts out there for all to see.

Thinking back to the times I’ve sat by bedsides of my family, and those acquaintances in the nursing home where it was at one time my job to comfort people in their last hours, I believe it never gets easier no matter how frequent you’ve been in that last waiting room with someone.

Each person’s last journey is different, which makes your own experience unique. It impacts wives, children and friends in separate ways, though they are with the same person. If each person at a bedside sat down and wrote their feelings each perspective would not be the same.

The waiting room. Minutes and seconds tick off on the clock. The first person whose death I witnessed was my cousin Ervin. He was in the hospital and we came to visit. My aunt, his mother, and also his wife were there. He took a quick turn for the worse and we knew he would go to a better place soon. My aunt asked if my husband and I would stay with them. I wanted to run out of the room and go home but felt we had to stay. I had never seen anyone die before and I was scared of my reaction, and instead of being a comfort, I would be a problem. I need not have worried. I held it together and kept my aunt close and my cousins death was peaceful.

A few years later my mom called me to be with my uncle, my dad’s brother. My mom left and he got worse. I was left with the choice of life support. I knew he didn’t want that and he had lived his life. I was there when he too left this earth.

There have been other occasions to sit with my loved ones on a final journey. It is never easy. It is never the same. It is never where I want to be. Yet, I have felt the presence of God. I have felt the presence of angels or messengers or whatever you want to call them and have seen the faces of my loved ones smile in welcome. Sometimes the waiting room lasts for weeks, or it might be hours or days. It is never easy but it is what you do for someone you love

That isn’t always the experience of everyone but that has been mine. My mother had a glowing smile on her face while she was in the waiting room. I asked her what she was smiling about and she answered, “Because I’m going to see your dad, my mom and dad and my brothers soon.”

Those words gave me peace. I don’t pretend to understand what happens while our loved ones are in the waiting room. And I have no explanation why some leave this earth easy and why some have to struggle so much.

Life is full of puzzles. When serious things are happening our emotions can get jumbled. We don’t see things clearly. All we can do is wait for the outcome no matter the situation. We can’t see the forest for the trees. We begin our life in the waiting room waiting to be born. And we occasionally end our life in the waiting room too.

For me sharing the journey through journaling and writing helps me sort out all those confusing moments preparing us for the next journey, or the waiting room where we can be silent and find our next path.

Memories Are Made Of This

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Most of my readers are aware of the huge downsizing I’ve had to go through this year. It wasn’t exactly my choice, though I’d been saying for years it had to happen.

If you recall last March I struggled with packing up our four-bedroom home and reducing my stuff to a two-bedroom apartment. Then I forced myself to part with more for a move to a one- bedroom apartment. My heart had to take a few more jolts to let go of my storage space conglomeration, and because I was moving again to smaller one-bedroom I had to eagle eye what I had left.

I think Marie Condo, the organizer guru,was on to something when she said, “Keep only things that speak to your heart.” The first move I found too many things that spoke to my heart such as my first doll, my first teddy bear, and mementoes from my children. With gritted teeth and help from a friend I let many of them go.

By the third move I was so tired I let things walk out the door with friends and strangers.

Yesterday I needed a large vase and tore through my cupboards looking for my favorite blue vase my husband and I received for a wedding present all those years ago. I realized it was one of the items that probably ended up in a thrift shop somewhere.

As much as I miss some of my “stuff” , and at times feel sad about it, I believe I feel freer now. I don’t spend my time rearranging or looking or taking care of endless objects that I thought meant a great deal to me. In reality they were just objects, some left from an era of family that had no meaning to me, but yet guilt wouldn’t let me part with them because they were family relics. Relics kept because they had meaning to past family members but escaped my adoration.

It’s exciting to fill my space with fun eclectic finds all new to me which speak to my heart as Marie Kondo advised. Yet, I find the few things I have kept from the past, whether I realized it or not, speak to my heart too.

From the pictures on my walls to the knickknacks gracing my tables when I see them they each have a memory of someone special in my life.

One memory may be strange but unique. The time of Lent and Easter is a reminder of not only the season for me, but of my mom. Every Easter season, on Palm Sunday we received palms. They were the tall, willowy ones. My mom would keep hers and braid it. She was very good at the art, and then she would put it n a vase where we could see it. I never asked why, or if I did, in my young age, I never paid attention to the answer. Doing my research I found the palms symbolize the warding off of evil and are supposed to be burned the following year on Ash Wednesday. The Palms having been blessed, should only be burned and buried, and it also is an old tradition to burn the blessed branches before natural disasters asking God to avert or lessen the coming disaster.

I found a braided palm when I packed up my mom’s house over twenty years ago. I remember the final years she lived in her home, it sitting in a vase in the window. I may not be Catholic anymore but the roots run deep,and I knew you didn’t throw the palm away. There was something about it that touched my heart knowing my mom’s love of her religion, and what the palm symbolized to her. I could see her braiding it with care. I kept it. It sat on my windowsill in a vase reminding me of her.

Fast forward to all of these moves. I took a little heat from people that I wouldn’t let go of that braided palm. They didn’t understand my stubbornness. I carefully packed it and unpacked it all three times. It’s brittleness making it a challenge to move so it didn’t disintegrate in the packing. Today it sits in another vase in my bedroom reminding me this Easter Season of the journey to the cross and also of the past, and the faith my mom had. And…of course her talent weaving and braiding those palms.

We pare down, let go of our past lives symbolized by the stuff we have saved, hoarded, hid only to bring out to see what was in the box and always feel guilty because our family chides us about all we keep. Yet, somewhere in the muddle of the junk and the regrets of keeping so much are the memories that are attached, because there are mementos which melt our hearts each time we look at them. They help us remember who we are, where we came from and what matters. Those are the items we need to keep to help us stay attached to our roots. The ones we have to ponder deeply, hold to our hearts and ask ourselves how deeply they speak to our heart and why.

Someday I will burn the braided palm. Or perhaps my family will in my last days. Maybe I’ll be surprised and it will be passed on down the family for as long as it will hold together to remind them of God’s love, His sacrifice of His son and the roots that are deep into our life called family.

Bouncing Back

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Writing has always come easy to me. It’s been a way to get my feelings out
and move on. Lately I have been frozen, not able to articulate much of
anything.

If you’ve followed my journey and the trials of living with someone with
memory loss, then you’ve known the struggles. It was probably obvious to
everyone but me I wasn’t handling it well. I was plowing through. Reacting,
reacting, reacting.

After my husband went into memory care in late November, it was followed by
both of us getting Covid, and for ten days we were both sequestered in our
separate apartments. It gave me some respite, but it wasn’t enough. I thought I
was fine, but I was pretending.

In the middle of January, I had to move out of the senior living community
where my husband was in the memory care section. It meant more packing. It felt
like all I had done during the past eight months was pack. The move went smoothly,
and I now live in a small, peaceful, cute apartment with others my age. My body
did not react well to the peace or the change. As long as things were chaotic,
I could seem to hold it together, but my mind didn’t know what to do with the
peace.

I hadn’t been eating well in a long time. I wasn’t hungry and my throat,
chest and stomach tightened when I thought of eating. The one thing I had going
for me was that I slept soundly at night until about a week after I moved.

I woke up in the middle of the night with a tight chest, feeling like I
needed to burp but couldn’t, and experiencing wanting to jump out of my skin.
Crying all the time was easy. I finally realized I needed help. I couldn’t go
on pretending I was alright, though I was probably the only one that thought
that. My daughter took me to the ER. No, I wasn’t having a heart attack; I was
having a panic attack and severe acid reflux. Basically, I was having a
meltdown.

For the past twenty years, I had been on anxiety medication and medication
for my stomach, but those medications were stopped in October. I foolishly
thought I could do without it during the most stressful period of my life.

Because of my up and down anxiety about our situation, I alienated some of
my family. They couldn’t deal with our drama and if you know me, in good times
I am a dramatic person, so multiply that when I am depressed and anxious.
Knowing this only added to my anxiety and depression. And yet, though I knew
those facts, I didn’t seek help. There was no time in the drama of my life to
do that for me.

The silence of being in a new place after my diagnosis in the ER was a
blessing. My doctor said I was exhausted. I needed rest. Some days I would just
sit on my bed, close my eyes, listen to the silence and breathe. It was all I
could do. The thought of making myself food or paying a bill, doing any cleaning,
and even going downstairs to get the mail was too much. I felt frozen.

After the first week on medication, I was slightly better, although the meds
were messing with my stomach, so I decided I needed to try to do something. My
anxiety and stomach were still yelling at me. I would tell myself: “At 1:00 I’m
going to clean the bathroom.” I’d clean the bathroom and go right back to my
bed to breathe. At 2:00 I’d complete another small task. Surprisingly, I got
quite a bit done this way. Eventually I would have shorter intervals.

Little by little and another change of medication so my stomach wasn’t so
wonky, I am improving. I can go down to coffee, visit my husband and even make
it to Menards with a friend to find curtains for my window without shaking or
feeling I want to run and hide. I’m taking it slow.

For some reason we think we can do it all. Maybe it’s the media telling us
we can do it all. Maybe it’s our stubbornness that we don’t admit we need help
to navigate the hard times in life. It could be we listen to the voices that
have never walked in our shoes and don’t understand, making that known with
their words, and we hear those voices the loudest. It could also be we were
taught to show any weakness is shameful. Growing up in the 50s many times
parents would warn us when we were crying: “You want something to cry about?
I’ll give you something to cry about.” Tears were not accepted, especially for
men.

As a result, many of us oldsters hide what is happening. Wisdom comes with
age and experiences. I absolutely was not the most understanding daughter with
my mom when my dad died. I was 20, newly married with a baby on the way and so
I didn’t understand what a loss it was to her. I was too mired in me. When she
got dementia, at first, I ignored it. I didn’t know how to deal with it.
Because of this I understand the younger generation not understanding our aging
process.

Healing from mental health and physical problems is a journey. Each person’s
timeline is different and whatever they are feeling is real to them and
shouldn’t be compared to our own journey. We need to not judge mental health
issues and embrace supporting those we know whether we understand or not. When
you are in the midst of angst it’s hard to find your way to the resources
available and then navigate the muddy road of the process of organizations.
That’s where the support of friends and family comes in, finding the resources
and gently pointing us to better health while listening and being patient.

I again can laugh and see light in the future. Prayer and family and
friends, along with the medical community, are walking the steps with me. They
are proof angels still exist. I am sharing so those who feel hopeless know life
can be good again. I’m getting there. Find your angels. They are there if you
share your struggle. And you might find them where you least expect it. I did.