A Year of Mourning

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It will be a year tomorrow, on June 26, that I held my husband in my arms for the last time as he took his final breath. It was a year of sorrow, tears, blessings and joy. Isn’t that what a life is? A mixture of feelings squashed together, wringing the worst and best out of us.

It was a long year, yet a short year with some days slowly marching through the minutes and seconds, and other days soaring fast from sunrise to sunset.

The last few years with my husband were difficult because of his dementia. Caring for him was hard. If you haven’t experienced it, it is hard to understand because there is so much you don’t see if you’re not a 24/7 person in the caregiving realm. You miss seeing the sweetness that can turn in a minute to anger, always surprising you, keeping you on edge or as the saying goes, pins and needles. Sleep is a rarity. Nighttime is difficult because of sundowning. Yet, you plod on because of love, feeling it is your responsibility to take care of someone you’ve loved and lived with for fifty or more years.

This past year my emotions have been all over the place. Living alone for the first time I faced fears that I felt were silly. But because my anxiety had been out of control while caring for my husband, it didn’t vanish overnight, it just shifted to other things. My body felt like lightning bolts were hitting me while shopping in the grocery store, or being in a large public building, or going downstairs for coffee. I wanted to hide away. I had to schedule work in my home for as small a thing as washing dishes or vacuuming. I would say to myself, “At ten I will wash dishes.” Then I would rest for hours so I could get up for my scheduled load of clothes in the wash machine at two. Small steps as these, gave me so much anxiety, I would be sick. I imagined death in the shower from a fall and no one to call for help. My mind was all over. Driving a distance made me shake, and making a commitment for an engagement made my heart pound and my body weak. I could go on, but I beat myself up on not being strong enough to get over those feelings.

I couldn’t cry anymore. I cried for years while he was sick, large tears, loud sobs and my friends and families’ shoulders were soggy every time they saw me. Some of them understood and other’s thought I was just looking for sympathy and feeling poor me. I maybe was, but not intentionally, and though I knew this, and a few people and family were avoiding me, I still couldn’t stop. I too was sick in heart and mind. I was the lowest of the low the last few years, but I had to plod on, knowing how weak my reserves were. I couldn’t be there for anyone else, not even my children. I was emotionally drained. Not being able to cry on the outside after his death stressed me out and made me feel guilty. I felt I should be crying more now than then, because he was gone.

I am healing. I no longer am afraid to take a shower. I am not afraid to be alone. I had help in that department. My beautiful cousins understood my fear and gifted me an Apple watch to wear so should I fall and need help; it would detect it. That watch became a lifeline the first few months and now too. Friends would call often and check on me. A couple friends got me out on small shopping trips at intervals and encouraged me as I shook walking through the store. A new church welcomed me in and befriended me. My family, kids and grandkids, took time for me. My daughter would pop in or take me out for coffee or a day away, and my grandchildren took day trips with me and made me laugh. My neighbors where I live made sure I was never lonely. A Pastor friend and his wife from many years ago, called sometime twice a week to just chat. There are many others I did not mention, such as my online friends who kept me going with messages and phone calls. It truly takes a village to raise a senior citizen in mourning.

My doctor said I was tired and needed rest. He felt I had PTSD from taking care of someone with dementia. I prayed, meditated, listened to music and became stronger. But I beat myself up continually in wondering if I did enough for my husband’s care. Did I fight for his health enough or could I have been more precise and demanding with the doctors? Should I have taken him off hospice to get him surgery for his back, so he didn’t have to be on so many drugs for pain? Did I spend enough time with him in memory care? Should I have fought harder when I thought the care was not what it should have been? Maybe if I had stayed with him overnights, he wouldn’t have had all the falls and had the pain associated with it. Did I let him die when I should have fought for him to live? No matter what anyone said to me those silent fears were there. I still struggle with them now a year later.

They say God puts people in our lives when we need them the most, and this past month two people entered my life. Two different situations that gave me perspective and helped me feel someone understood my weird fears.

The first is a woman who lost her husband last June too. She shared with me her attempt at taking care of someone with dementia and then living alone for the first time in her life. She couldn’t go to the store without panic attacks. She was afraid of taking a shower that she would fall. Driving distance made her shaky. She too scheduled her household chores. And she felt guilt at not being sure she had done enough. Her feelings mimicked my feelings and my insecurities. I began to feel I was normal.

Another person entered my life as a friend. They too are alone for the first time in fifty-three years. It’s a different scenario I won’t get into, but they shared with me the fear of being alone for the first time too. This friend was driving out on the road in the country, and they began a panic attack because their mind asked themself, who do they call in case the car breaks down? They weren’t prone to panic attacks until now. Eventually they realized they have many friends they can call, but they couldn’t call their spouse. This was a male person and they again helped me see life changes and anxiety spans the sexes.

I’m sharing this on the anniversary of my husband’s death so others know that the feelings they may have after the death of a spouse are their feelings, but other’s share the insecurities that to the world who have not experienced this, seem silly. Each person’s grief is different.

The good memories are back. I look at pictures, have dreams almost every night about my husband and cherish what we had. The good, the bad and the in-between. He was the love of my life. It doesn’t matter what the world saw. Marriage is joyous, difficult, loving, scary and there is no normal. Marriage is compromise and forgiveness. People need to choose on their own what they can live with and when they need to let go to live.

This year I’ve lost my sense of humor in my writing, when I can actually bring myself to write. I need to find that again. I’m learning new things such as wood burning with a laser, watercolor painting, spoon carving. I recently took a class in vibrational sound. Zip lining is on my list though I don’t know if I will complete that one. I learned I’m an introvert pretending to be an extrovert. I would be lazy in my room alone if my friends and family weren’t always pulling me out into an enticing activity. This year has been extremely busy to keep me from wallowing in grief. Now I am feeling the need for a little solitude to take care of me. My friend that I mentioned earlier is doing the same thing. She echoed my thoughts. Taking care of ourselves is one of the hardest tasks, because we were so used to taking care of our spouse. It feels decadent to spend time on us.

I have no advice for getting through losing a spouse. I’m still figuring it out. What I do know is that I have to figure me out, taking the time to find out who I want to be when I grow up, because death and losing the one you love changes you, no matter what the relationship was. Most of my adult life I was part of a couple. I am learning what it is to be me, alone for the first time, finding my path and journey for hopefully, many years to come. And cherishing the life I had.

“What is lovely never dies, but passes into another loveliness, star-dust or sea-foam, flower, or winged air.” — Thomas Bailey Aldrich

I Remember …

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Where were you when John F. Kennedy was assassinated? We have seen that question asked over and over again for those of us who are old enough to remember it. That was a big event in our nation’s history. In our own lives events might not be so monumental but yet they stand out as pivotal times in our lives that propel change. Each of us has those moments and these are mine.

Photo by ATC Comm Photo on Pexels.com

I remember somewhere around seven to eight years ago, going to Grandparent day at my grandson’s school located in a suburb of a large city. Sitting in his classroom I took note of the fact that the class was composed of many different races. In fact, I remember thinking my grandson was almost a minority in this classroom. This was a shock for this white woman from a small community in Southern Minnesota. I made sure I did not mention my observations to my grandson as he was oblivious to all of this. He hadn’t yet been made aware of the differences. All he knew was that they were his friends.

I remember attending a band concert at my granddaughter’s school during the time when suspicion and fear of Somali immigrants were high. I walked past a Somali woman with her head covered in her hijab and I too felt fear and suspicions because of what I had heard. I noticed there were more Somali parents with their children in my granddaughter’s school. Those from the community didn’t give them a second glance because they knew them and that was their normal, but I must admit because of all the attention by media and government, misinformation and haters, and no experience knowing a Somalian, I was afraid. Would we be in danger during the concert? I remember thinking I didn’t have this problem back home in my community. I felt comfortable and safe there.

I remember the first time I came in contact with a gay person. He was a friend of ours. We had known him for years but we didn’t know he was gay because he kept it hidden. He finally came out to us. It stands out in my mind that though we knew of this, someone decided they needed to point out to us that our friend was gay. They thought we didn’t know. Though our friend was our age he was also a friend of our daughters, and the person thought we should keep him away from her, and we should stay away too. They knew we wouldn’t want to expose our daughter to those things.

I remember the first time I met a black man. He was the husband of my best girlfriend from high school and they visited our home in our small white community. We didn’t have qualms about meeting him because if my friend could love him we would too, However, we wondered how our three-years-old and six years old would react and if they would say anything. They didn’t notice his skin was another color.

I remember the first time I met a Morman. The family moved to town and the husband worked with my husband. I was told by many to stay away from them because they would try to convert us to their ways. Some people shunned them. We gained loving friends and surrogate grandparents for our kids and religion was never talked about, though one of them was a leader in their church. Unless we asked a question they didn’t try to convert us to anything. They just loved us as family and spent many hours at services at our church supporting my children.

I remember when my relatives came to visit and stay for a few days when I was a teenager. They were Jehovah’s Witnesses. The flag went up with many of my parents friends. And my church at that time had taught me to be wary of the evil they may teach. I had already met them from a previous trip to visit them in California so all I knew was the love and caring of family, no matter the difference in religion.

I remember the first time I met a Transgender person. I knew them all their lives, however, I didn’t meet them as who they were inside until the last year because they hid it out of their fear of how we would react. They were family and my reaction when I finally knew, was love.

I wasn’t always tolerant of any of this. I would say in the past ten years I have evolved after a long hard look at myself, what I learned as a child, what I learned as an adult, and what ideals were actually chosen by me to believe, or what was planted in my head without thought and question and that included my religion and my belief in God.

I grew up in a religion that told you to believe and not question. I did that but was always silently not quite sure about what I was being taught. I came from a family where my mom was Catholic and my dad was Protestant. I was told I would go to hell if I believed or changed religions. I was never allowed to go to my dad’s church because it was a sin. We could go for the fabulous church dinners but never for the services. I don’t remember how we worked out attending funerals because we did do that when relatives on my dad’s side died. I wondered how all my relatives on my dad’s side could be going to hell because they were such good people. I wondered in my later years why would my mother marry someone she knew was going to hell because she really believed that. I finally did attend my dad’s church, for his funeral. How sad is it I missed all the years I could have attended church with him when he was alive if it wouldn’t have been for those preconceived edicts from my church at the time? It makes me very sad to think of that.

When I finally changed religions, my mother, to the day she died, told me I would go to hell and when she was in her dementia state she told me she should have disowned me when I changed religions.

I had a good reason for changing. I wanted to go to church as a family and when we got married the priest that presided at our wedding told my husband two things that really stood out during our counseling. The first was that he shouldn’t join the church because they had enough bad Catholics, and the second was that the Vikings were ***** rich and I can’t mention the racial slur here. That cemented my decision. I didn’t feel a man of God should speak that way of another race, or without knowing my husband, make the judgment that he would be a bad Catholic as I knew how strong my husband’s faith was having been through what he had been through in Viet Nam and being raised by a mother who had a strong faith.

I wish I could say that was the moment when I started to question what I totally believed in my life, but it wasn’t the aha moment you might think. It is moments over the years of questioning, experiences, and taking a hard look at myself that has gotten me to old age, and not without many mistakes and acts of prejudice that I didn’t think of as prejudice, and am ashamed of today.

I remember a former Catholic school member who became involved in a cult. This was one aha moment that began my questioning. He came to speak at my church to give us a little parenting advice. At that time I had two young children. When I heard him speak I asked him what I could do to protect my children. He answered, “Make sure they know what they believe and why they believe it.” I know I thought to myself, how can I teach them that when I don’t know what I believe totally either.

Life continued on and I worked on that advice but I switched to prejudice on a different front. If my children friended someone who didn’t have a good reputation I would not let them hang out. I will tell you now that it is the worst advice I could have given my children. Instead I should have welcomed those kids into my home and got to know them. You see, I listened to what everyone else was saying without giving them a chance and not making up my own mind. I am ashamed of that reaction and I try to do better now.

I began to notice in small ways the way prejudice seeps into our lives, even tiny little nudges in my own life.

I remember being told by someone I loved like a daughter, when she found a new religion, that she could no longer be in touch with me because I didn’t believe like she did. That was thirty years ago and to this day we have no contact, though I have tried.

I remember being told by a church council member when I gave an opinion on a decision waiting to be made to allow an LBGTQ support group to meet at our church, that I didn’t give enough money to our church to have my opinion count. My opinion was that if people felt the need for this group we should provide a place, but others did not feel that way and it was denied.

Recently a friend was invited to a girl’s get together. When asked if she could bring me she was told I wouldn’t fit in. I suspect because of my views on many of these subjects along with politics or maybe they no longer like me as a person because I do state my opinions and do not go along with the crowd.

I remember a letter I received from a reader when I started my column telling me how ugly I was and how I was ugly as a child and that I never had any friends. I kept the letter to remind me to try and never be like that.

In no way have I experienced what other friends and family have experienced because of their race, gender, or religious affiliation. In our culture, we seem to overlook the little slights that are there every day and accept them without thought. Little judgements in our own lives that are directed at us or those we throw out to others in the world erroneously that may pave the way for bigger ones

You might now be wondering or saying, “Get to the point.” It is this. I am a sum total of the parts of my past. I had prejudices I didn’t know I had until I was confronted with them. I have prejudices that are still there but I don’t see, especially if I don’t question what I am feeling or where those feelings about others or events came from, or why I make decisions that affect others’ lives.

I thought I knew what I knew until I didn’t, until life and experiences changed my perspective. I would have missed wonderful,caring relationships if I wouldn’t have been confronted with issues I was uncomfortable with, never given them a chance, and shown a different perspective.

This is my story and why what I believed has evolved over the years. I can’t imagine what life would feel like now if I hadn’t questioned, had held on to my rigid views, and boxed myself into a tiny world where I stayed in my comfort zone and there was no growth.

I can only hope that I can keep growing and learning no matter how old I become. I can only hope I still work on those prejudices I have buried inside of me, some that I see, acknowledge, and are working on, and others that will pop up as the world keeps changing. I admit I still judge harshly especially when it comes to hate and discrimination. When I feel judged by others I judge them back. I am a reactor and that is my first reaction. I boycott establishments where I feel employees don’t show respect for others by not wearing masks. I stay away from venues where I feel there is more judgment than welcome. So I too am guilty of the same thing I accuse others of. I know it’s not right but those human emotions are right there under the surface ready to rise up at any moment.

There is not an easy answer for me. Perhaps as in other instances that I mentioned, my perspective will change because of experiences as I will keep questioning and searching, and looking inside of myself to know what I believe and why I believe it.

I am not trying to change your mind on anything here, just sharing my story in the hope that during these challenging times you remember the words of my old school friend. “Know what you believe and why you believe it.” And also these wise words, The right decision is made out of love, not fear. —spiritual enlightenment